The FamilieSCN2a Foundation board and committee members have worked extremely hard and have made tremendous progress towards reaching the goal of finding a cure for all of our kids. The members of the foundation all share the same passion, values and ethics and believe in a cure through research.
The SCN2a Mutation is rare, so rare it doesn't even have a name yet.
When most of the kids are diagnosed, parents are told the same thing, "there is no cure", and "very little is known about this mutation."
These are words that no parent ever prepares to hear in regards to their precious new baby and it can be extremely devastating.
What you can do is help us reach our goal of finding out how to manage, find treatments, and ultimately a cure for this rare genetic condition. Every dollar counts toward helping children affected by SCN2a. Thank you for your generosity!