Leah Schust's mother taught her to face adversity head-on -- "whatever you do, don't do nothing." So when Leah's son Ben was diagnosed with life-threatening seizures at 13 months (due to a rare genetic disorder), "doing nothing" was never an option. Instead, she launched the very first SCN2a support group through Facebook, uniting hundreds of families around the world who each thought they were alone in their medical fight. Leah and a few parents then created the FamilieSCN2A Foundation, devoted to increasing awareness and raising money to fund research for a cure. In addition to serving as the foundation's president, Leah is a loving mother and wife, executive meeting planner for a global Fortune 500 healthcare company, and foster mama to orphaned puppies. She lives in Frederick, Maryland. “Do your little bit of good where you are; it’s those little bits of good put together that overwhelm the world.” ~ Desmond Tutu