In 2012, Jenny Burke was grateful to finally have a diagnosis for her son, Alex, who has suffered from devastating seizures since birth. But it wasn’t until Leah Schust connected with her three years later that she began to have hope in finding a cure for this rare genetic disorder. Jenny draws on her experience in publishing and that of being a small business owner to help the FamilieSCN2a Foundation reach it’s fundraising and research goals. She feels blessed to be working on behalf of all families affected by an SCN2a mutation at home while caring for her own family: Alex (15), his brother, Sam (17) and her husband, Mike. In her spare time between doctor/therapy appointments, Jenny may be found cheering at lacrosse games, reading for two books clubs and a Bible study, volunteering at the high school and with Young Life, and possiby exercising (or at least walking the dog). She lives in Sterling, Virginia.