Carla Forbes has an internal drive to get things right. This drive stems from her many years spent in dance tediously practicing routines until she reached perfection. When her child was born and immediately started having seizures, she faced the challenge head on, fighting for the best care from the start. Carla does not settle for “good enough” in any aspect of her life, but especially not when it comes to her son, Colin, age 4. When she learned of his diagnosis, a rare genetic condition called SCN2a, she immersed herself in learning more and was one of the first to join the online support group set up to connect families with the same diagnosis. From day one, Carla spent her time in the group encouraging and surrounding the other parents with her positive and caring attitude. Quickly, she became a leader in the group and co-founded the FamilieSCN2a Foundation, a 501-c-3 set up to find a cure for SCN2a. Carla wears many hats in the foundation, including vice president, treasurer, recruiter, and family mentoring but most importantly, she believes in a cure and makes it her life mission to share the hope with others.